A 13-year-old’s journey with a rare condition
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A 13-year-old’s journey with a rare condition

Taran Kamath is living with Niemann Pick, a rare condition where abnormal amounts of lipids build up in the brain, spleen, liver, lungs and bone marrow affecting multiple body systems. His mother Navintara Kamath shares the journey of her child in this interview. She chronicles his experience with this rare disease from diagnosis to being the first child to receive enzyme replacement therapy for Niemann-Pick in India.
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Navintara Kamath

Mother of Taran Kamath

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